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73: An Interview with Ron Bartek, Founding President of the Freidriech's Ataxia Research Alliance (FARA)
Episode Ep 73 April 12, 2023 12 min 10s

73: An Interview with Ron Bartek, Founding President of the Freidriech's Ataxia Research Alliance (FARA)

From Rare Care Podcast • Rare Care Podcast

Larry Luxner, senior corespondent for Rare Disease Advisor, interviews Ron Bartek, founding president of the Freidriech's Ataxia Research Alliance (FARA), about the hope generated by the recent FDA approval of Reata's omaveloxolone (Skyclarys)—the first-ever therapy to treat this rare neuromuscular disease.

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