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Rare Care Podcast - Podcast | OndaCast

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Rare Care Podcast

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Rare Care Podcast

에Rare Disease Advisor

Rare Disease Advisor's Rare Care Podcast features exclusive interviews with experts and stakeholders from the rare disease community.

99개 에피소드•구독자 0명•0 총 청취 횟수

에피소드 재생목록

50개 에피소드

An Interview With Rigoberto Garcia, Executive Director of the Hemophilia Foundation of Southern California

Jan 31, 2025•—

An Interview With Rigoberto Garcia, Executive Director of the Hemophilia Foundation of Southern California

An Interview With Dr. James Bussel on Fetal and Neonatal Alloimmune Thrombocytopenia (FNAIT)

Feb 5, 2025•—

An Interview With Dr. James Bussel on Fetal and Neonatal Alloimmune Thrombocytopenia (FNAIT)

An Interview With Andrea Renzi, a Patient Advocate for Women Affected by HDFN

Feb 12, 2025•—

An Interview With Andrea Renzi, a Patient Advocate for Women Affected by HDFN

An Interview With Dr. Sangeetha Venugopal on the relationship between smoking and myelodysplastic syndromes (MDS)

Feb 20, 2025•—

An Interview With Dr. Sangeetha Venugopal on the relationship between smoking and myelodysplastic syndromes (MDS)

An Interview With Hereditary Angioedema Expert Dr. Timothy Craig

Feb 27, 2025•—

An Interview With Hereditary Angioedema Expert Dr. Timothy Craig

An Interview With Heather Landau, MD, on the Latest Therapies for Amyloidosis

Mar 6, 2025•—

An Interview With Heather Landau, MD, on the Latest Therapies for Amyloidosis

An Interview With Retired NFL Athlete and Amyloidosis Patient Advocate Art Still

Mar 13, 2025•—

An Interview With Retired NFL Athlete and Amyloidosis Patient Advocate Art Still

An Interview With John Anderson, MD, Expert on Hereditary Angioedema

Mar 17, 2025•—

An Interview With John Anderson, MD, Expert on Hereditary Angioedema

An Interview With Clinical Hematologist and Professor Dr. Luke Chen

Apr 1, 2025•—

An Interview With Clinical Hematologist and Professor Dr. Luke Chen

An Interview With Generalized Pustular Psoriasis Expert Arash Mostaghimi, MD

Apr 7, 2025•—

An Interview With Generalized Pustular Psoriasis Expert Arash Mostaghimi, MD

An Interview With Duchenne Expert Katherine Mathews, MD, of the University of Iowa

Apr 11, 2025•—

An Interview With Duchenne Expert Katherine Mathews, MD, of the University of Iowa

An Interview With MDA 2025 National Ambassador Lily Sander

Apr 15, 2025•—

An Interview With MDA 2025 National Ambassador Lily Sander

An Interview With MDA Patient Advocate Donavon Decker, Winner of the 2025 MDA Legacy Award for Community Impact in Research

Apr 28, 2025•—

An Interview With MDA Patient Advocate Donavon Decker, Winner of the 2025 MDA Legacy Award for Community Impact in Research

An Interview WIth Lisa Butler, CEO of the GBS-CIDP Foundation

Apr 30, 2025•—

An Interview WIth Lisa Butler, CEO of the GBS-CIDP Foundation

An Interview With Chris Lewis, Son of Famous Comedian Jerry Lewis

May 8, 2025•—

An Interview With Chris Lewis, Son of Famous Comedian Jerry Lewis

An Interview With Joyce Kullman, Executive Director of the Vasculitis Foundation

May 8, 2025•—

An Interview With Joyce Kullman, Executive Director of the Vasculitis Foundation

An Interview WIth Antonella Favit-Van Pelt, MD, PhD, on Neuromodulation to Treat Multiple Sclerosis

May 15, 2025•—

An Interview WIth Antonella Favit-Van Pelt, MD, PhD, on Neuromodulation to Treat Multiple Sclerosis

An Interview With Huntington Disease Patient and Advocate Lauren Holder of Help 4 HD

May 19, 2025•—

An Interview With Huntington Disease Patient and Advocate Lauren Holder of Help 4 HD

An Interview With Amyloidosis Patient Dan Lier, a Partner With the Nonprofit Group 'Somebody To Talk To'

May 26, 2025•—

An Interview With Amyloidosis Patient Dan Lier, a Partner With the Nonprofit Group 'Somebody To Talk To'

An Interview With Lucy Culp, VP of State Government Affairs at the Leukemia & Lymphoma Society

Jun 9, 2025•—

An Interview With Lucy Culp, VP of State Government Affairs at the Leukemia & Lymphoma Society

An Interview With Allucent's Marcus Delatte, PhD, on Using Cannabinoids to Treat Patients With Rare Seizure Disorders

Jun 13, 2025•—

An Interview With Allucent's Marcus Delatte, PhD, on Using Cannabinoids to Treat Patients With Rare Seizure Disorders

An Interview With Lyza Weisman on Living With Spinal Muscular Atrophy

Jun 18, 2025•—

An Interview With Lyza Weisman on Living With Spinal Muscular Atrophy

An Interview With Dr. Sithara Ramdas on Neonatal and Juvenile Myasthenia Gravis

Jun 20, 2025•—

An Interview With Dr. Sithara Ramdas on Neonatal and Juvenile Myasthenia Gravis

An Interview With Ashley Stanley-Copeland, MD, of Dell Children's Medical Center in Austin, Texas

Jun 26, 2025•—

An Interview With Ashley Stanley-Copeland, MD, of Dell Children's Medical Center in Austin, Texas

An Interview With Ashley Stanley-Copeland, MD, of Dell Children's Medical Center in Austin, Texas

Jun 26, 2025•—

An Interview With Ashley Stanley-Copeland, MD, of Dell Children's Medical Center in Austin, Texas

An Interview With Dr. Daniel Grant, VP and Global Program Head at Novartis

Jul 2, 2025•—

An Interview With Dr. Daniel Grant, VP and Global Program Head at Novartis

An Interview With Dr. Angela Vincent, Winner of the Myasthenia Gravis Foundation of America's First Lifetime Achievement Award

Jul 8, 2025•—

An Interview With Dr. Angela Vincent, Winner of the Myasthenia Gravis Foundation of America's First Lifetime Achievement Award

An Interview With Dr. Carolina Barnett-Tapia, Associate Professor of Neurology at the University of Toronto, on MG Treatment

Jul 14, 2025•—

An Interview With Dr. Carolina Barnett-Tapia, Associate Professor of Neurology at the University of Toronto, on MG Treatment

An Interview With Robert Steen of Norway on the Award-Winning Movie 'The Remarkable Life of Ibelin'

Jul 23, 2025•—

An Interview With Robert Steen of Norway on the Award-Winning Movie 'The Remarkable Life of Ibelin'

An Interview With Dr. Richard Nowak, Director of the Yale Myasthenia Gravis Clinic

Jul 28, 2025•—

An Interview With Dr. Richard Nowak, Director of the Yale Myasthenia Gravis Clinic

An Interview With Aspiring DJ Yuva Gambhir

Aug 5, 2025•—

An Interview With Aspiring DJ Yuva Gambhir

An Interview With Ileen Colin del Río, President of Duchenne Mexico

Aug 13, 2025•—

An Interview With Ileen Colin del Río, President of Duchenne Mexico

An Interview With Kfir Oved, CEO of Canopy Biotech, Which is Pursuing Novel Treatments in MG

Aug 18, 2025•—

An Interview With Kfir Oved, CEO of Canopy Biotech, Which is Pursuing Novel Treatments in MG

An Interview With Dr. Pradeep P.A. Mammen on Females With Duchenne Muscular Dystrophy

Aug 27, 2025•—

An Interview With Dr. Pradeep P.A. Mammen on Females With Duchenne Muscular Dystrophy

An Interview With Michio Hirano, MD, a Global Expert on Thymidine Kinase 2 Deficiency

Sep 3, 2025•—

An Interview With Michio Hirano, MD, a Global Expert on Thymidine Kinase 2 Deficiency

An Interview With Dr. Jennifer Brown, Director of the CLL Center at Dana-Farber Cancer Institute

Sep 8, 2025•—

An Interview With Dr. Jennifer Brown, Director of the CLL Center at Dana-Farber Cancer Institute

An Interview With Nikki McIntosh, Founder of Rare Mamas and SMA Patient Advocate

Sep 16, 2025•—

An Interview With Nikki McIntosh, Founder of Rare Mamas and SMA Patient Advocate

An Interview With Dr. Shoshana Revel-Vilk, Director of the Gaucher Unit at Israel's Shaare Zedek Medical Center

Sep 24, 2025•—

An Interview With Dr. Shoshana Revel-Vilk, Director of the Gaucher Unit at Israel's Shaare Zedek Medical Center

An Interview With Catherine Miller, PharmD, of Intellia Therapeutics on an Experimental Gene Editing Therapy for HAE

Oct 1, 2025•—

An Interview With Catherine Miller, PharmD, of Intellia Therapeutics on an Experimental Gene Editing Therapy for HAE

An Interview With Dr. John Mascarenhas, Professor at New York's Icahn School of Medicine

Oct 10, 2025•—

An Interview With Dr. John Mascarenhas, Professor at New York's Icahn School of Medicine

An Interview With Dr. May Lee Tjoa, Maternal and Fetal Immunology Expert at Johnson & Johnson

Oct 15, 2025•—

An Interview With Dr. May Lee Tjoa, Maternal and Fetal Immunology Expert at Johnson & Johnson

An Interview With Dr. Nicole Lamanna, Leukemia Specialist at Columbia University Medical Center

Oct 22, 2025•—

An Interview With Dr. Nicole Lamanna, Leukemia Specialist at Columbia University Medical Center

An Interview With Lisa Shea, Director of Global Patient Advocacy and Engagement for Immunology at Johnson & Johnson

Oct 29, 2025•—

An Interview With Lisa Shea, Director of Global Patient Advocacy and Engagement for Immunology at Johnson & Johnson

An Interview With Gabriela Romanow, Founder of Rare Vision, a Project That Helps Artists With Rare Neuroimmune Diseases

Nov 4, 2025•—

An Interview With Gabriela Romanow, Founder of Rare Vision, a Project That Helps Artists With Rare Neuroimmune Diseases

An Interview With New Mexico Patient Ambassador Karen Smoot of the Pulmonary Fibrosis Foundation

Nov 11, 2025•—

An Interview With New Mexico Patient Ambassador Karen Smoot of the Pulmonary Fibrosis Foundation

An Interview With Rheumatologist Eric Matteson, Winner of the ACR's 2025 Presidential Gold Medal

Nov 19, 2025•—

An Interview With Rheumatologist Eric Matteson, Winner of the ACR's 2025 Presidential Gold Medal

An Interview With Dr. Barry Byrne, Director of the UF Powell Gene Therapy Center

Nov 24, 2025•—

An Interview With Dr. Barry Byrne, Director of the UF Powell Gene Therapy Center

An Interview With Rheumatologist Jinoos Yazdany on the Dangers of Artificial Intelligence

Dec 3, 2025•—

An Interview With Rheumatologist Jinoos Yazdany on the Dangers of Artificial Intelligence

An Interview With Dr. Sarah Chang on the Patient and Caregiver Burden of TK2d

Dec 8, 2025•—

An Interview With Dr. Sarah Chang on the Patient and Caregiver Burden of TK2d

An Interview With Dr. Matthew Might on How AI Could Transform Genome-Guided Medicine

Dec 17, 2025•—

An Interview With Dr. Matthew Might on How AI Could Transform Genome-Guided Medicine

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도움말 연락처 이용 약관 개인 정보 보호 저작권 DMCA 회사 정보 라디오 가이드 플레이어 퍼가기

Waves Explore Library Vibes Podcasts Audiobooks