You’ll Pay for This: Julie Croner on the Value of the Patient Experience

On today's show, we welcome Julie Croner, Vice President of the Patient Leader Network at WEGO Health. Julie is a rare disease activist who has been educating and empowering patients for more than a decade with tools to better advocate for themselves and others. She and I met a while ago at one of those spectacularly stupid Pharma conferences where tokenism reigns supreme. These are the conferences where they ask patients to share their story FOR FREE—that's right, NO compensation for time or value, because that's their way. At the time, I was one of those suckers who did just that: Gave away the store that was my patient experience for free so the private sector could go off and make a fortune off the disenfranchised backs of patients. The upside? I got to meet Julie Croner. Julie knew better, so she went ahead and took up the charge at WEGO Health, which we'll learn about on the show. Tangential to this episode, you may want to consider scrolling back in my feed and checking out Episode 14 called "Pay Your Fucking Patients." You can tell this is a subject that really pisses me off, which is why – again – someone like Julie is the perfect person to chat with about all the things. Enjoy my talk with Julie Croner. WEGO Health: https://www.wegohealth.com. Episode 14: Pay the Patients! See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.