We Are All Connected

Stories in this episode: Julie, Whitney, & Brooke each have a story to tell about the struggle and surprises of a life lived in pursuit of discipleship, but they can't tell their story without one another and they can't tell their story without the extraordinary life of Jonah, the little boy who brought them all together. 

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TRANSCRIPT

KaRyn  0:03  
Welcome to "This Is the Gospel," an LDS Living podcast where we feature real stories from real people who are practicing and living their faith every day. I'm your host, KaRyn Lay. 

I kind of feel like today's theme doesn't need much of an introduction at all. So I'm going to keep this short and sweet. Because if there is one principle of the gospel that we all understand just a little bit better after a full year of social and physical distance, it's the power and purpose of human connection and just how inextricable that connection is, to our spiritual practice. And have we got a story about connection for you. 

Actually, it's one big story with two little stories in the middle. And it's kind of hard to explain, but I think it's going to become clear soon enough. First, we'll start with our storyteller Julie, then you're going to hear from Whitney, and then Julie again, and then Brooke, and then back to Julie, and then Brooke and then Julie. 

And just a quick note for sensitive listeners that this story does involve some trauma related to loss. Here's Julie:

Julie  1:07  
Our first son Jonah came into the world 10 days late. It was my first baby and I had all these ideals about what his birth would be like, and my whole pregnancy had been so good, and I had felt so healthy and strong. And all of our ultrasounds that we had were fine. We never had any indication that there would be any problem or any challenges for our baby. 

It was just this beautiful experience to be pregnant and to feel him move inside me. I was sure that I was just gonna let him come on his own terms. And 10 days after his due date, my doctor said, "No, we need to induce you." 

That day was so exciting. The birth was good, but when he was finally born, the doctor put him up on my belly. And when I first looked at him, I could tell right away that something wasn't quite right. And I didn't get very much time with them because they whisked him off my belly. And all of a sudden there was this flurry of activity around us and the respiratory therapists came in and they took Jonah and kind of moved him away from me. And I remember my mom coming over and comforting me and I just didn't even know what was happening. 

I just said remembered seeing his little ears. They looked almost like little flower petals that hadn't quite opened all the way. My husband Jordan was over by the nurses and he was kind of watching what was going on, and he came over to me and I remember him saying, "Julie, he has the most beautiful lips." And I think he was in this moment of trying to process, you know, what we were experiencing. But it turned out that he had a lot of problems with his facial structures. He had a cleft palate, his jaw was underdeveloped, his cheekbones were underdeveloped, and his ears were not fully open, like they had just started to develop and stopped midway through that development. 

We didn't know what caused it or whether he'd be able to see or whether he'd be able to hear. We didn't know if he would have any kind of mental delays, but we loved him so instantly. And it wasn't until the next morning after a night of changing diapers and trying to figure out how to feed him that our doctor came in and told us what his diagnosis was. He told us about Treacher Collins syndrome, which is a syndrome that affects the facial structures and development of the face. And the other thing the doctor told me is, "I'm almost 100% sure that you are the carrier of this genetic disorder." 

It was good to know what he had because we knew that he would be able to see and he wouldn't be able to hear with the help of a hearing aid, we knew that he wouldn't have any kind of developmental challenges. But I had this place in my heart that just hurt so bad because I knew that I had carried this, you know, thing that was inside me that had . . . that wasn't my fault. But I felt the strange responsibility for being the carrier of that gene. And almost the immediate realization too, that any children that we tried to have in the future would have a 50% chance of having the same experience that our sweet Jonah was having. 

We knew that he was going to face a lifetime of surgeries to correct some of those things that he had to deal with, and it was all so overwhelming. And I tried to put on a brave face and I tried to be really present and to be optimistic. But as soon as I could get up and I got int