Building Ryan House: From Grief to a Movement for Pediatric Respite and Palliative Care

Send us Fan Mail A rare diagnosis shattered a young family’s plans—and then reshaped a nation’s approach to caring for medically fragile children. We sit down with Jonathan Cotter to chart the path from his son Ryan’s SMA diagnosis and sleepless nights in London to discovering Helen House, the world’s first children’s respite and palliative care home. What began as a desperate search for help became a blueprint for dignity: overnight respite that restores parents, supports siblings, and wraps...