Marc’s Race Against Time for Life-Saving Drug | Manchester News

Marc Powell, a 60-year-old man with a rare form of Motor Neurone Disease, is racing against time to access the life-extending drug Tofersen — a treatment that could slow his disease but is currently out of reach due to limited hospital capacity and pending NHS funding decisions. With fewer than 100 people in the UK affected by his specific SOD1 variant, Marc’s battle is both personal and urgent, as he watches his body fail while fighting for every moment with his family. His voice, now carried by a machine, underscores the devastating toll of MND — and the hope that this breakthrough therapy might yet save him before it’s too late.

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